Map “Children with BOS”

icon worldmapBohring-Opitz Syndrome (BOS) is a rare disease. This map is an opportunity for families of children with BOS to meet and connect each other and maybe – one day that comes from meeting face-to-face.

We are rare, we are special – together we are strong!

Would you like that your child with Bohring-Opitz Syndrome has its own place on the map “Children with Bohring-Opitz Syndrome”? Please do not hesitate to send us a message at In addition to place of your child it is also possible to share your child’s name, a picture and/or your own website regarding parenting a child with Bohring-Opitz Syndrome.

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