Bohring-Opitz Syndrome (BOS) is a rare disease. This map is an opportunity for families of children with BOS to meet and connect each other and maybe – one day that comes from meeting face-to-face.
We are rare, we are special – together we are strong!
Would you like that your child with Bohring-Opitz Syndrome has its own place on the map “Children with Bohring-Opitz Syndrome”? Please send us a message at firstname.lastname@example.org or complete our consent form. In addition to place of your child it is also possible to share your child’s name, a picture and/or your own website regarding parenting a child with Bohring-Opitz Syndrome.