Please feel free to meet these amazing families who have created their own personal Facebook/Instagram Pages about raising a BOS child and see how they enjoy their wonderful children!
ASALBO – Asociación Almeriense Síndrome Bohring-Opitz an initiative of Amaia’s parents
Is this list incomplete? Please feel free to send us your Story about raising a child with Bohring-Opitz Syndrome.
If you are the parent or caregiver of a child with BOS, it might be helpful to talk with other parents who have a child with the same condition in our “Bohring-Opitz Support Group”.