newly-diagnosedNewly diagnosed with Bohring-Opitz Syndrome?

You will find a lot of information on these pages.  Contact us to get support from our network of families around the world.  In our support group we can offer you information, support and advice on any question or concern you have related to Bohring-Opitz Syndrome.

Join us

We also welcome your involvement in the efforts of the AЯRE Foundation. AЯRE will bring together the medical and scientific leaders to study ASXL genes and clinical challenges so that we can improve care management strategies, assist with patient advocacy, and ultimately introduce potential treatments/cure.

We are on this journey together and need your help to realize this vision.  Please consider to rally family & friends to support this important cause through volunteer efforts and donations.

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