Each child should have an individual care plan. It is important that the individual care plan is designed to meet the unique needs of the patient. The plan should be routinely followed, monitored, and adjusted as needed.
Early intervention program (EIP)
Most children require an early intervention program, which is a special program that aims to help a child with learning disabilities develop, as well as provide support to the family. Many of these programs serve children from infancy until the age of three.
School
Increasing numbers of children with Bohring-Opitz Syndrome are educated in mainstream nurseries and schools with support. However, children’s needs vary and some parents feel that a special school will be most suitable for their child.It might help to visit both mainstream and special needs schools in your local area. It will be important for you to talk to the staff to learn about how the school will meet your child’s special educational needs.
Therapies
Speech and language therapy and oral motor therapy to help with any problems communicating or feeding. A cleft lip and palate team can help parents with adaptive feeding devices and advise with feeding therapy.
Communication issues can be helped with Augmentative and Alternative Communication ACC.
Physiotherapy or Physical therapy, to help with muscle weakness and/or movement difficulties. An occupational or speech therapist can help with fine motor dysfunction.
Vision therapy
You will be advised about things you can do at home to help your child learn and develop. You may also have the opportunity to find out about your child’s condition and meet other families in similar situations.
Your paediatrician can give you further information about early intervention.
Bohring-Opitz Syndrome 