Bohring-Opitz Syndrome Foundation – The Bohring-Opitz Syndrome (BOS) Foundation holds several fundraisers each year to facilitate sympathy gifts to individuals with Bohring-Opitz Syndrome who have joined their Birthday club. The Foundation also sends welcome baskets to patients who are newly diagnosed with Bohring-Opitz Syndrome. Furthermore, the foundation organizes an annual meet up event in the United States and attends summits and conferences to help promote medical awareness.
Bohring-Opitz Syndrome 