All articles filed in Bohring-Opitz Syndrome

A new family story! As I set out to write a story of Miranda, the first thing that pops into my mind is old familiar song lyrics, “how do you catch a cloud and pin it down?” She is amazing, challenging, magical, and profoundly an individual. However all of these traits might not be obvious…

A new Family story The dream of one’s own child…who doesn’t dream about it? So, mum and dad. They had to wait so long for me. And what do they do, these expectant parents? They look forward … (read more about Jannis)

A new Family story! Kylee’s diagnosis was undetermined until late last year(2013) when her test results came back positive for Bohring Opitz Syndrome. Kylee was born with … (read more about Kylee)