BOS Awareness Day April 6th

BOS logo vierkant awareness with BOSribbon

Bohring-Opitz Syndrome will have the first Awareness Day on April 6th. Our awareness colours are blue denim and gold.

Why this day?
This day was chosen because that’s the day that the Bohring-Opitz Syndrome support group was created on Facebook 4 years ago! This group has helped so many families to connect all over the world!

Why this colours?
Many children with Bohring-Opitz Syndrome are suffering from high myopia. Contrasting colours like blue and yellow are the best perceived colours.
Bohring-Opitz Syndrome is a rare genetic condition. Only 35 cases are reported worldwide. Denim is the awareness colour for rare and genetic diseases.
Our children love shimmering objects like gold. And above all, our children are worth their weight in gold. The diamond is to honor all our children who became wings too early.

Help us to raise awareness by wearing blue denim and gold for Bohring-Opitz syndrome on April 6th!

BOS ribbon golddenimshadetextdgroot