When I read Annessia’s story I felt overwhelmed, I went through a mix of emotions: resentment and fear but also hope, pride, admiration, love and joy. On 9/9/2015 Annessia was diagnosed with Bohring-Opitz syndrome. Please meet this strong and lovely princess. Many thanks to Annessia’s parents for sharing her story!
You can read this new family story here.
Bohring-Opitz Syndrome 