29 Days until #RareDiseaseDay

29days29 February 2016 marks the ninth international Rare Disease Day coordinated by EURORDIS. This year the theme is Patient Voice – Join us in making the voice of rare diseases heard. 

Bohring-Opitz Syndrome (BOS) is a rare disease and we want to invite you to learn more about BOS, so please feel free to visit our Facebook Page “Children with BOS”. In the next 29 days, every day, we present here a fact about BOS.

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