Do you know that …?

#BOSFACT – 29 facts about Bohring-Opitz Syndrome from Bohring Opitz on Vimeo.

29 February 2016 marks the ninth international Rare Disease Day coordinated by EURORDIS. This year the theme is: PATIENT VOICE! Bohring-Opitz Syndrome (BOS) is a rare disease and we want to invite you to learn more about BOS. In February 2016 we presented 29 days, every day, one fact a day about Bohring-Opitz Syndrome.

Please feel free to visit us on Facebook and make the VOICE of children with Bohring-Opitz Syndrome heard.

Thank you!

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.