Do you know that …?

#BOSFACT – 29 facts about Bohring-Opitz Syndrome from Bohring Opitz on Vimeo.

29 February 2016 marks the ninth international Rare Disease Day coordinated by EURORDIS. This year the theme is: PATIENT VOICE! Bohring-Opitz Syndrome (BOS) is a rare disease and we want to invite you to learn more about BOS. In February 2016 we presented 29 days, every day, one fact a day about Bohring-Opitz Syndrome.

Please feel free to visit us on Facebook and make the VOICE of children with Bohring-Opitz Syndrome heard.

Thank you!

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