On April 6th, the day that the first support group for families and carers of children with Bohring-Opitz syndrome (BOS) is created, is BOS Awareness Day! On this day we honor all the children, born with Bohring-Opitz Syndrome, their families and friends as well as all the caregivers of these children. For this day we make extra efforts to spread information on Bohring-Opitz Syndrome, a syndrome on which is still little known.
We are excited and proud that this year April 6th marks the day of the fifth anniversary of the support group. With the Facebook event “HIGH 5 for BOS” we want to thank all the families for helping each other by sharing their stories and experiences. Please join to show your support and to shed the light on all children with Bohring-Opitz Syndrome on April 6th, the Bohring-Opitz Syndrome Awareness Day! Thank you!