Thank you

thank-you

A big THANK YOU to you all who have given attention to Bohring-Opitz Syndrome on the international celebrated Rare Disease Day. Thank you for changing your profile picture to spread the word of Bohring-Opitz Syndrome and Rare Diseases, thank you for sharing information about Bohring-Opitz Syndrome like #BOSFACT and BOS infographic to give your family and friends the opportunity to learn more about our rare disease. Also a big shout out to the BOS Foundation who is tirelessly dedicated to children and families with Bohring-Opitz Syndrome. The sum of your individual contribution makes also this year’s Rare Disease Day again a very special day for us, affected by Bohring-Opitz Syndrome. Thank you!

2 thoughts on “Thank you

  1. Catherine Sweigart says:

    Oh my gosh, you’re soooo sweet but please there’s no need to thank me. I’m only doing what should be expected of any parent, I’m desperate to have my son well. I’m a single mom so things take me a little longer… 🙄 I so badly want to contribute and be more involved with BOS, affiliated organizations, families and children, it’s just taking me a little longer to get settled into our now new norm but I will be very soon. I’m almost there… 🙏🏼 ⭐️💙⭐️

    >

    Liked by 1 person

  2. Sünne says:

    Thank you. 🙂 Sometimes it’s the little things that matter most. Despite the importance of these big events, it’s the little things, the everyday objects that truly define us. We may share a big event with others, but we don’t all take away the same memories or lessons. So there is no right or wrong way or even a perfect time to be involved. I appreciate your support and your contribution is more than welcome!

    Like

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