A big THANK YOU to you all who have given attention to Bohring-Opitz Syndrome on the international celebrated Rare Disease Day. Thank you for changing your profile picture to spread the word of Bohring-Opitz Syndrome and Rare Diseases, thank you for sharing information about Bohring-Opitz Syndrome like #BOSFACT and BOS infographic to give your family and friends the opportunity to learn more about our rare disease. Also a big shout out to the BOS Foundation who is tirelessly dedicated to children and families with Bohring-Opitz Syndrome. The sum of your individual contribution makes also this year’s Rare Disease Day again a very special day for us, affected by Bohring-Opitz Syndrome. Thank you!