The 2nd ASXL Conference will be held at the University of Michigan, Ann Arbor! The 2019 ASXL Conference (July 19-21) will include informational workshops, equipment and therapy fair, family focus groups with medical specialist facilitators, opportunities to submit samples for biobanking and enroll in the ASXL registry, bbq with therapy dogs at the park, and more!
Registration & Scholarship
Registration is FREE of charge for all families. AЯRE Foundation will be subsidizing hotel rooms for ALL families at the 2019 ASXL Conference. Travel scholarships are available for families in need. Please visit the website to complete this simple form and apply.
Family participation at the conference (in person and virtually) is critical to keep momentum and engagement with the medical and scientific community.
Hope to see you in July!!
Bohring-Opitz Syndrome 