Since we have known what syndrome our little angel was affected with, we have been even more admirative and proud of Eva, and of her fight.
But we do not understand why our children must experience this.
We are sure of one thing : Eva has transformed us forever and has filled us with love, not only us the parents, but also all those around her. She positively changed our vision of life and of the afterlife, forever.
Bohring-Opitz Syndrome 