11 years ago in 2011

It’s Bohring-Opitz Syndrome Awareness Day!

This day was chosen because that’s the day that the Bohring-Opitz Syndrome support group was created on Facebook, on April 6th 2011! 11 years ago!

This group has helped so many families to connect all over the world!

With this awareness day we want to encourages people to learn more about Bohring-Opitz Syndrome to improve the lives of children and their families and caregivers living with this rare genetic condition.

>> Find here all information about this day and how you can help to increase awareness for Bohring-Opitz Syndrome. We are looking forward to see your picture with our picture frame on social media.

>> Please feel free to take a look to “printables and downloads” to share with your family and friends all over the world. You can find here presentations, infographics and feature cards and much more.