11 years ago in 2011

It’s Bohring-Opitz Syndrome Awareness Day!

This day was chosen because that’s the day that the Bohring-Opitz Syndrome support group was created on Facebook, on April 6^th 2011! 11 years ago!

This group has helped so many families to connect all over the world!

With this awareness day we want to encourages people to learn more about Bohring-Opitz Syndrome to improve the lives of children and their families and caregivers living with this rare genetic condition.

>> Find here all information about this day and how you can help to increase awareness for Bohring-Opitz Syndrome. We are looking forward to see your picture with our picture frame on social media.

>> Please feel free to take a look to “printables and downloads” to share with your family and friends all over the world. You can find here presentations, infographics and feature cards and much more.