Memory Lane BOS Angels

“If love could have saved you, you would have lived forever!”

This page is dedicated to the memory of all our BOS Angels. May they all be happy together.

We believe it’s so important to keep their memories alive and to remember their families.  Please take the time to read the stories of each of these precious children and leave a note for their families as they go through this difficult time.
We will never forget these little angels.

Would you like to share your Angel with us? (also in your own language) Please contact us at sunne@bohring-opitz.org


Eva

To our little Eva, with whom we lived 14 unforgettable months: Eva left abruptly on February 10th, 2019 at the age of 14 months. We became informed about the genetic mutation ASXL 1, and the BO Syndrome, at the end of July 2019. This is why we would like to give our testimony today, and to do so more specifically with regards to the care for our daughter. Continue reading


Jackson

My wonderful wee boy passed away peacefully in his sleep at 2am on Tuesday 4th February 2014. The post-mortem determined “unexplained natural causes relating to underlying syndrome”. May he rest in peace. Continue reading


Luna

Luna was born at 22 weeks and 6 days, the birth was terminated. Luna is our first child. We always dreamt of having children.
Continue reading


Okke

Mijn hele leven lang,
Zou ik over jou kunnen vertellen,
Overal zou ik dingen tegen kunnen komen
Die mij aan jou herinneren
Hoe klein, hoe … Continue reading


Tiia-Maria

At the first moment there was some difficulties with feeding of the baby. She looked like a normal sweet baby, but there was guite a big “heartmark” on her forehead. Actually she was really beautiful with her curly dark, thick hair. Continue reading


1 reply to Memory Lane BOS Angels
  1. You will never be forgotten, Okke! Keep shining down on your beautiful family! You are an inspiration to all of us. Love, Sheri

    Like

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